Patients

The DayOne Health Hack is designed as a patient centric innovation journey.  Led by patronage partner EUPATI CH and supported by consortia representing all stakeholders of the healthcare ecosystem the DayOne Health Hack reaches out to patients who want to assume an active role in finding new, digital driven solutions and improving healthcare for the better. Our patient champions supported by the DayOne Health Hack Consortium will be enabled to transform their needs into curated challenges that will be worked on and brought to tangible proof of concept solutions during the hackathon on 7 to 8 November in Basel. After the hackathon the solutions will be presented at the DayOne Conference and may be brought to realisation through various acceleration and mentoring programs.

Thematic Areas for Health Hack 2020

1. Awareness and literacy 

Patients think that the general public should be more aware of the risk of acquiring specific diseases (especially cancer). The need to do regular check-ups and screenings, and the benefits of both, should be made known and pushed (e.g. PSA or Pap test screening). In addition, awareness of reference/normal values, and the meaning of these, should be communicated to physicians and patients to align knowledge and medical literacy among the patient, caregiver and HCP communities.

You have the right to request access, rectification, erasure or rectification or restriction of processing concerning your personal data.

If you are not satisfied about how we handle your personal data you may lodge a complaint with a competent supervisory authority.

2. Data interoperability 

Patients struggle with the fact that HCPs are not usually updated on their situation, which means they need to explain their story over and over. Data and documents are not shared quickly enough between HCPs, and often patients lose track of their medical reports. Patients would like to have a safe space where they and their doctors can access their data. A common data channel would also help address the current lack of interprofessional collaboration and communication. Furthermore, patients would have the ability to provide supporting documents (reports, prescriptions) in urgent situations.

3. Sharing within patient communities   

This topic is all about information and support. After an important meeting with the doctor, patients are frequently left with a diagnosis while being unable to remember anything else. What follows is a moment of shock and a feeling of loneliness and frustration. Uncertain where to look for information and support, they often find themselves on the internet with contradictory information or unreliable sources. In sum, patients would like to have an easily discoverable and accessible platform, where they can:
•Find more experienced patients with the same diagnosis,
•Find reliable and trustworthy information written in understandable language,
•Tell stories, share feelings and receive support in decision making processes and everyday issues.

4. Measurement of causal factors   

Today you may feel fine, but tomorrow you may feel it is the worst day of your life. What changed? Is it something you did or is it something that happened to you? These are questions that patients ask themselves all the time. What external and internal factors influence my well-being? These factors may not always be obvious, such as, for example, the weather. Patients would like to be able to measure these influences automatically and match them to their subjective well-being. This could provide them with deeper insight into their situation while also providing an unbiased (e.g. without flaws of memory) overview of the course of their disease, which could support them in meetings with HCPs.

Thematic Areas were courtesy of Experientia

Data Privacy Statement

During the DayOne Health Hack Process personal health data may be collected and processed by BaselAreal Business & Innovation which is an association in the sense of Art. 60 ff. of the Swiss Civil Code (Schweizerisches Zivilgesetzbuch; SR. 210) and funded by private and public partners to promote innovation and inward investment for the northwest cantons of Basel-Stadt, Basel-Landschaft and Jura.
We will base the use and processing of your personal data including your personal health data on your consent. You have the right to withdraw your consent with effect for the future at any time.

We will delete your personal data and personal health data after we have reached the purpose for which we have collected the data and once we are no longer required by law or have the right to retain your personal data including your personal health data.

You have the right to request access, rectification, erasure or rectification or restriction of processing concerning your personal data.

If you are not satisfied about how we handle your personal data you may lodge a complaint with a competent supervisory authority.

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